Rank: Newbie
Groups: Member
Joined: 4/7/2010
Posts: 2
Location: bundaberg
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hi all im nikita taylins mum, he is now 5 mths old.we found out that he has classic pku when he was 4 days old, the shock of my life as i had never heard of pku in my life!
im still new to this he is staring on solids soon so any advice would be great!
ant i was wondring if any one lived in BUNDABERG QLD?
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Rank: Advanced Member
Groups: Member
Joined: 10/17/2008
Posts: 40
Location: Perth
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Hi Nikita!! Welcome!My name is Fiona, and I have a 2 year old with PKU. Like you and probably all of us here), I had never heard of PKU until my daughter was 4 days old and her test came back positive!! (I also have a 4 year old non-PKUer)
When Kaitlyn was starting on solids, I gave her a bit of puree carrot to start with, then I mixed it with puree zucchini and later (week or 2), I added sweet potato, or potato, but you would have to "count" the amount of potato you added. Basically, she lived on the carrot or the carrot/zucchini mix until her allowance went up - she started at 0.3g, then went up to 0.7g, then when we decreased "normal" formula, her allowance went up significantly.
I hope that helps... there are alot of ppl here willing to help and to give you advice, and to give you tons of support :)
don't be shy to ask for help!! :)
YES! We can! - Barack Obama
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Rank: Guest
Groups: Guest
Joined: 9/8/2005
Posts: 260
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Hi Nakita, my name is Kristen and I live in the Bundaberg region I am 20 and a nursing student I do not have pku however my partner of 2 years does...when i first learnt of pku- his mum gave me some books to read, and I have a collection of recipies she has acquired over the years if you would like to borrow them you are quite welcome too.
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